My life needs to change...

We all are, shall we say, strongly encouraged to make changes in our lives at times. Sometimes they are because we want something better sometimes God says "You need change" and narrows our options so we must make them. He always allows us to decide but there are times when he narrows the options so we will do something. This is one of those times for me.
I've known for a while that I cannot survive, much less thrive, as I am living now. I'm not happy with much of anything right now. Discontent is never a happy place to be; but at times it's what we need to see that we must make a change. I have decided to go back to work. My husband has been laid off for over 2 years now and has no desire to do anything but what he used to do for work. Not necessarily a bad thing but there are no jobs in that field right now. He has decided that he's just going to be here. There is much more to this of course, but the basic idea is that he's doing dishes and not much else. I feel that you should support your husband in times of hardship but I also feel that turning down a job in his field (the only one offered in 2 yrs) because you want $27/hr and it's only $15 is wrong. His pride is again more important than the family needs are. Unfortunately I've seen that a lot over the years. I am continuing to pray for guidance for us and our family (lots of other issues here too).
I feel that going back to work and putting college on the back burner is what I need to do right now. I applied for a job listed with our local hospital last Sunday afternoon. I got an interview call on Monday. The interesting part is that the call wasn't for the job I sent a resume for. It's for what I have a degree in and honestly enjoy doing. I believe that's God at work. This job wasn't, and still isn't, listed. It has the flexibility I need with a special needs child at home. I've wanted a job like this since Boo was about 3 and I started thinking about returning to work. I can use my Spanish in this position if needed too so the schooling I've done so far is not a waste. I think education is never a waste but when it comes with the price tag I'm going to be paying the knowledge should be used as often as possible. I believe God opened this door for me. I'm believing that he's got a plan and purpose for me in this position. I've done the interview and am waiting to hear from them. I am believing that this is my position. Of course there are times when the negative thoughts slip in but I push them back with the thought that I didn't know this position existed, it found me. I should know by mid-week if all goes well. Pray for me please. I really need this job. We can't exist on what we bring in right now. We're falling behind and there are things that need taken care of that have been put off for many months.
Finances seem to be the biggest problem in many troubled marriages. Ours is no different. This won't fix everything~I know that. I just hope it will ease some of the burden so we can focus on the other issues we need to address.
Happy thoughts. Today is Monday. The start of a new week full of promise and potential. :)

This just might work...

Yesterday I decided to use the computerized machine to sew for a friend. It's super slow going but I can do it since I don't need to use my foot. I can barely reach the ironing board so I need to get more creative to use the iron but at least I can start to do a bit of sewing for us & my shop.

I've got finals this week. Review in Kinesiology tomorrow morning, Spanish in the afternoon. The Spanish final is on Tuesday and Kines is on Thurs. They allow 3 hours for each. After that.....SPRING BREAK!!!! YAY!!! I really need a break too, lol! I think I need to rearrange 1 of my classes for next quarter though. If they do end up doing surgery I don't know if I can keep up with all 3 classes. Still debating that though. These classes aren't too bad and I should be able to prearrange any work so there isn't much to make up. I don't know. I'll think about it some more before I decide anything.

Breakfast is ready. My wonderful hubby is doing everything now so I can stay off this foot. He has not had a meltdown yet so I guess that's a good sign, lol. Taking full time care of Boo & me & the house & most of what Gracie needs is a 2 person job but he's doing it with no complaints. :)

Happy Sunday everyone! Enjoy what's left of the weekend.

Computer games for the challenged...

I've been looking into computer games for Boo. There is an OK selection out there, which is nice. I'm so tired of the TV babysitter. I got Daddy to adapt a mouse to use one of Boo's switches and downloaded a trial version of one of the games I'm considering.

I think he likes them! We need to get an adapter for the mouse that now works with his switch so he's trying to use a standard mouse. It's a bit challenging but he's only got to click it on either side so he's doing pretty well. Looks like I'll be ordering that game and maybe a few others. Thankfully they're reasonably priced between $30-$60. It's a lot of money but most of them have several different games on each disc.

Mitochondrial Diseses

We now have 2 more disorders to add to the rather complex list.

 Mitochondrial Complex 1 and Complex 5 deficiencies. Most of the information I found last night was so clinical. I'm looking for information that is in layman's terms so I can explain it to my family and figure out a plan of action. If anyone has any good (or bad for that matter) ideas where to look PLEASE PLEASE let me know. Also if you're dealing with this or have friends/family who are please send me to their blog. I'd love to get another parent's point of view and see what I can gather from them.

Thanks! Enjoy your weekend...I'm going to "just breathe" for awhile.

More minor surgery...

Well Boo did great on Friday. He had a muscle biopsy for diagnostics. We're hoping that this will tell us what happened to cause all his disabilities but there's still now guarantee. Really we're hoping that this will give us a plan of care for him.
They took out 2 pieces of muscle that were about the size of a dice (each one!). He's done a great job. He's not been too grumpy and is sleeping well so now we just wait for the results. Again. ;)

Another job interview

Well I had a job interview a few weeks ago with the local hospital. I was one of 2 "finalists". I didn't end up getting the position. It came down to me not having "current" experience. Well I've been home with my disabled 6 year old soooo my experience in a PAID position isn't current but I have plenty of experience with Medicaid, insurance companies, and lots of people skills since we have so many different kinds of people we deal with for all my kids health issues.

Now, I have a "second" interview on Monday with an in-state small company that provides in-home care for waiver clients. It's actually a perfect position for me (weekend only) and I hope I get it. Basically I'll be getting paid to do what I already do but for other people besides my son. Keep your prayers coming and your fingers crossed. I'll let you know when I do.

MRI's & EEG's

Well we're finally home from the hospital. Boo had a 24 hour video eeg and a sedated MRI. The VEEG was so boring! You just stay in the room and they video everything he does for 24 hours. He did have some "events" one the screen but I think they are probably subclinical seizure activity. He's grown & gained weight but we haven't upped his medications so it's probably time. I don't mean to sound like I don't care, I do. It's just that we've been doing this for so long I'm tired of the "let's try this or test that" and still no answers. As long as his seizures are controlled I'm OK and letting God deal with the rest.
Anway, after they disconnected him we went down to MRI so they could sedate him and do that. Once again he "politely declined" to wake up after the procedure. I warned the anestheologist, she assured me this gas wouldn't do that...ummmm well it did. I asked what she used so I could add it to my list of things not to use again but no one could tell me so I get to research that later. His vitals looked great but it took 6 hours for him to wake up so I'd rather not use it again.
I understand that it could be a few days to a few weeks before we get the final test results...have I said how much is dislike waiting for test results?
Well, the kids are on spring break this week and our 9th anniversary is Wednesday so I'm planning to just spend time with the kiddos, sew, and enjoy the 3hour respite we'll have on Wednesday. The answers will come when they come...worrying does no good. Enjoy the rest of the weekend...I'm going to. :)

Diaper Pictures

I promised earlier that I'd post a picture or 2 of the new diapers...so here they are!

Later Gator cotton knit outer-super popular print


Cotton velour inner-gives a dry feeling & absorbency


I love the way this came out even though I rarely serge diapers. I usually prefer a turned & topstitched look but this was mainly for fit/sizing so serging was faster.

I am also loving how much stretch the knits give. For some reason I've never made a fully knit fabric diaper. I'm not sure why but I'm so glad I did. This will fit him for ages! There is so much stretch and flexibility with the plus they wash & dry so quickly since they are pocket dipes. We're using a wool cover and these are bullet-proof-NO LEAKS!! His disposables (ewww!) are now causing rashes and still leak even though they are a "quality" brand and made for kids his size. We're going back to cloth full time as soon as I get more made. No more paper undies! After all we don't wear them, why should our kids?

Pneumonia....grrrrrr!!

Well we've spent most of this week battling pneumonia. Boo's done more breathing treatments and taken more antibiotics than should be allowed. The upside is that we didn't have to go to St. V's.
We ended up at his re-check today (yep, 4+ inches of snow-no plowed roads & we went to the doctor). After fighting the crazy folks for my lane of the road; we got to the pediatrician just in time to watch someone slide right into a brand new Caddy! No real damage & no one was hurt. We managed to get parked and inside without getting too snow covered.
So here's where we are...
We get to start weaning down the breathing treatments. We only have 4 days of 2 different antibiotics left and he gets to go back to school on Wednesday (if it's open). We have to keep doing the pulmicort 2x day until who knows when but it could be worse. He's feeling better so we may start using his stander again in a few days. Right now we're only sitting up in the feeder seat or laying down.
We were supposed to go to his sleep study tonight but with all this snow we had to reschedule. I wanted this to be read & back to Dr. Lisa before his appointment in 2 weeks but they couldn't reschedule until the day after his neurology appointment. The doc will call if anything is weird but I like to be able to discuss the results since the nurse who calls results isn't very knowledgeable and not so great about getting back to us. We haven't had any more regression so I guess that's a good thing & I doubt the sleep study will tell us much anyway.
Maybe the intensive therapies we're planning for the summer will help bring back his communication and build up his strength. I really hope he can get that back. He's still such a happy little man but I want him to be able to let people know what he wants or needs. Unfortunately I can't be with him 24/7 and sometimes it even takes me a while to figure out what he needs. Time...we just have to be patient, get him completely well now and figure out the rest later. :)

I finally got to....

Sew....yep, uninterrupted sewing. Almost 3 whole hours of it! I know it sounds cheesy but it was nice to shut the door and just sew. I made a modified pattern and 2 tester diapers for Boo. They came out really cute so I'll take some pictures and post them tomorrow.

I finished them and came down just in time to watch the Super Bowl. Our Colts didn't come thru. :(

I'm not a sports nut though so I'm happy for the Saints. It was their first trip so it was a good thing. Still, it would have been seriously cool to win again. :D

What a stress filled week we've had....

Let's see, I've been absolutely terrible about keeping regular updates so that won't be a "New Years Resolution" again but I will try to do better so here goes...

The "good" news...

Gracie is doing pretty good in school right now. She still needs to get some help from OT but the school is still declining. I talked to her health care coordinator and we're working on a few options we have.

Boo is doing OK but he has a low grade temp and a cruddy cough so we're hitting the doctor in the morning just to be safe. I refuse to have a hospital stay because I didn't get antibiotics quick enough.

We had a lovely snow storm over the weekend. The kids even got to leave school early on Friday. It was only about 2 hours early so they don't have to make it up.

Last week my MIL came to stay with us for a while. She's going to live with or near my SIL later but SIL is moving to another state so she's going to get settled first. MIL may even get to be there when SIL has her first baby if all goes smoothly. That will be nice for both of them. MIL has been here for the baby time with both of ours so it will be nice to have that for SIL.

The "not so good" news...

Lastly, my wonderful grandmother passed away sometime Thurs night very unexpectedly. I think right now it's not really sinking in. I will miss her dearly...she's the only on who really understood the "mommy" side of having a special needs child. (You know "been there, done that" kinda thing.) My sister and I were talking about it yesterday. You see we have a rather different view of death. We both have worked with geriatric patients for many years and it's a part of life for us. I've been home for several years now but I still see things very differently than many members of my family do. I will miss her very much as I still do my grandpa but I'm not sad for her. She would have turned 79 in about 2 weeks. All in all she was pretty healthy and still able to be completely on her own. She drove herself and didn't need any homecare aides. She raised 9 children and helped raise many of her grandchildren and even great-grandchildren. She was here to see and hold some of her great-great grandchildren. How many people get to do that? She was able to complete her GED last year which was a huge goal for her. She's spent the last 2 years doing what she wanted when she wanted. I'm sad that she didn't get to go on the cruise my parents were planning for all of them this spring. I'm glad she didn't suffer-because I'm sure she didn't. I really feel that God called her and it was not a bad thing. Before my grandpa (her husband) passed a few years ago I was with him in the hospital and we were talking. I told him I wasn't ready for him to go and that it wasn't fair. He simply told me it was his time and he was OK with it. I guess that was all I needed to hear because after that I spent as much time as I could with him and when he passed, I was OK with it. My mother was able to spend most of the day with her mom the day she passed. I thank God for that. While we didn't get to prepare and say goodbye like we did with grandpa I know grandma is right where she should be and that she's happy now. There's no doubt. I will miss her as will all of my family but I am not sad-I refuse to be. She lived a long and full life. That is what I will treasure. I make a point of not taking note of dates when people pass because I feel like that is not what they would want me to remember or dwell on. Instead I choose to remember as many positive things as I can. From my grandmother I learned many things.
I gained a love of sewing, gardening, cooking, and family time. I see the importance of being there for your children passed down to my mother and then to me. I see many little things I picked up from her. I've really begun to notice them these last few days. Life wasn't always easy for her and grandpa. I know there were a lot more challenges than I will ever be told. I wish I had gone to Christmas last year and had her fill in a bit more of my memory book but unfortunately that cannot be changed. I will write what I know from memory and ask mom about the rest. We'll make note of what we can and the rest will just be unwritten memories. I miss you grandma and grandpa.

I really am going to sew...

Well, I decided to reopen the Etsy shop to try to bring in a bit of extra cash. Then, I found StalkShop and decided to open one there as well. It's new and still really small but it has huge potential so I'm going for it.
Now comes the change of plans....a family issue has reoccurred. My MIL has come to stay with us for a while. She will be moving in with my SIL but since SIL is in the process of a state to state move MIL will be with us for a while. SIL is expecting so she has to get moved, settled and ready for her son to arrive before MIL can move in with her. What a mess!

I don't mind a bit that she's staying here...she seems much more relaxed and I know DH feels better about her care. She pretty much does for herself but her communication is still difficult. Still she's already doing better. She wasn't overly thrilled about coming but realized it was for the best. I don't want her to feel like a burden...she's not. I feel better being able to see how she's doing since I tend to be the one dealing with her meds and such.

I think the biggest issue she has about being here is that she feel like she's in the way. I know it bothered her when we rearranged the house and gave her our bedroom. We just moved our stuff upstairs into the sewing room and I crammed it all in the closet for now. :)

I'm noticing a lot about her abilities and issues. She's not using her right arm at all and the hip is a bit achy. Still, her "non-cooperative" right side doesn't slow her down that much. :) We've tweaked her daily meds and she seems to be feeling better. I'm not sure how much of that is the med changes and how much is just getting out of the situation she was in. Either way she's doing better now.

It's nice for her to get to spend more time with DH, the kids & me. She hasn't been able to for quite a while now. Her being here also lets me be sure that she's not over or under medicated and that she's eating better.

Anyway, that's slowing down the sewing I was going to do. I figure I'm going to sew some to de-stress then I'll go back to cleaning and rearranging and de-cluttering this teeny tiny house. Life handed me a bag of lemons and I'm determined to make some sweet lemonade one way or another.

Sunday, Day 7 Downtown Disney and return home

Today we ate our final breakfast in the Gingerbread House and packed up our things. We decided to do some shopping at Downtown Disney since our flight home didn’t leave until 8:15pm.
We went to the kitchen shop first so I could get a few things. I’d really been looking for this Mickey Mouse apron and they were my last shot at getting it. I ended up with the display apron, some kitchen towels and a really cute set of measuring cups.
We split up and I took the kids to Pin Traders to get Boo his first lanyard and some pins. I’d gotten him 2 pins when we come before. We weren’t sure exactly what we wanted this time so we wandered and looked for quite a while. We ended up with 2 pins each, a lanyard for Nikolas & me, and 2 of the surprise specialty pins for the 10 years of pin trading.
After the pins we went to the Christmas shop and I bought a wonderful Disney frame for the excellent picture of the kids with Santa.
After a bit more wandering we loaded up and headed to the airport to turn in the van and wait for our plane. We got there about 3 hours early so there was a lot of time to kill. We grabbed some Burger King and went to our gate to wait. Mikayla and I went to the bookstore so she could get a book to read and way too soon it was time to board the plane.
We had such a magical time! I was definitely NOT ready to head back. As a matter of fact, Mikayla and I are already planning our next trip. We’ve decided to make it in either November or early December (probably 2011) so we can do some of the Christmas stuff.

A new year and a new endeavor...

It's a new year and I need a new "something". I've decided to start sewing again and I've opened a new shop. :) Suzanne's Special Kids at StalkShop.com http://suzannesspecialkids.stalkshop.com
I plan to start stocking it later this week. I'll be doing cloth diapers, wipes and g-tube pads in toddler thru adult sizes. Infant diapers will be custom orders in the Etsy shop for now. 2 shops and a lot of resumes out should hopefully bring in some income for us. Keep your fingers crossed and prayers coming.
Thanks and have a wonderful day!

Saturday, Day 6 Magic Kingdom

This was our last day in the parks and I planned it as a special day for Nikolas. We took him on every ride and show he could get on and enjoy.

After another wonderful breakfast at the Gingerbread House we headed out to the Magic Kingdom. Mom & Dad went too so Mom could ride the Pirates of the Carribean and then to the Hall of Presidents. While they were doing that we took more pictures with Daisy and Pluto and in front of the Castle from the Crystal Palace. Then we headed to the Pirates for Nikolas. Captain Jack was doing a live show while we were getting ready for the ride. Mikayla got a bit of it on video while I got Nikolas in the mei tai. This way Nikolas was able to sit on my lap and really enjoy the ride.

Next we rode the Magic Carpets which was a lot of fun. When we got off we started looking for mom & dad but didn’t see them. We did see Jasmine & Aladin so we got some pictures and headed off to find my parents. We took them back to the villa and the kids took a short nap.



We went back late the afternoon, just me, Mikayla and Nikolas. It was a wonderful afternoon! We decided to take the ferry over this time. This visit will be all about the rides! We took Nikolas on everything we even thought he might enjoy-some things more than once!



We rode Pooh, Snow White twice, the Tea Cups, the Haunted Mansion, the Hall of Presidents (so I could feed him plus it is educational), Mickey’s Philhamagic, and Pirates again. We watched the fireworks and ran out of time to ride Pooh again. We took our time and strolled out of the park, stopping for several pictures in front of the castle and in the front of the park at the new Christmas scene. We finally left at 10:30.

Day 4

Today is bonding day for Nikolas and the grandparents. Mikayla and I are going to Universal Studios just the two of us. We’ve been there before and I know that there really isn’t anything for him in those parks since he can’t play on the playgrounds and isn’t interested in most of those characters.
I reminded mom how to use my camcorder and after breakfast we were on our way. Today mom, dad and Nikolas are going to explore GKTW and take some pictures or video while we’re gone.

We got to Universal about 11:30 and went straight back to the Mummy. It was the only thing I “had” to ride. It was the only ride I hadn’t ridden last time we were there so it was a MUST DO for me. Mikayla had pretty good memories of what she liked and didn’t like to after riding the Mummy and deciding she really did like it we made a loop and started riding.
We started the loop with ET, which is really cute, then went over to the Simpsons. I’m not a huge Simpsons fan but that is a virtual ride and it’s really fun. We went over to Men In Black, which Mikayla remembered and wanted to ride again the skipped a few and went to Jaws. HINT: If you take your kids on this be sure they know the story behind JAWS or let them watch it if they’re older. I took her on this ride and the man running it was actually from our home town. It was funny since the first thing he said was that “no one is from Shelbyville….” my thoughts exactly! When that was over we moved on to Disaster…we found it rather dull and don’t really recommend it. Moving on we did Twister again and then Shrek for the first time. Shrek is really fun and one of the rides we’d both recommend to everyone. One last ride…Jimmy Neutron…we forgot Terminator and never even went into Islands of Adventure. Like I said, we’ve been there before and there aren’t a lot of things we like to do since we aren’t big coaster people. We were done there by 3:00 and called to have mom order a late lunch from Katies Kitchen. We just went back (oops-there was confusion so we stopped at Taco Bell) and rested for dinner and Christmas at the Village.

Christmas and Santa were AMAZING!! They even created snow for the kids. Santa is willing to hold any child you are willing to put on his lap and that alone was nice since so many people are leary of holding our kids with all the equipment some of them have. We got some neat gifts and went outside to play in the snow and see all the decorations. We met up with Cathy and the kids and had a blast. She got some cute pictures of the kids playing together. It’s a really nice way to spend a special evening with your kids and we had a wonderful time.




-If you only go to 1 or 2 of the evening activities....make sure that Christmas and Pirates & Princesses are it. They are amazing and all kids are very included in everything. They were very theraputic for both of my kids. They never once felt like outsiders for a change. :)

Day 3 continues...

After Peter Pan we started toward Mickey’s Toon Town Fair. When we passed Ariel’s Grotto we notice that she was there and stopped for some really nice photos and a meet-n-greet. My son is such a flirt! He was laughing and grinning at nearly everything she said or did. It was really nice because this was a character Mikayla wanted to meet last time and we kept missing her so now we have the much longed for autographs!



We stopped for a photo in front of the sign and started the character meets. Today there was Tink, Fawn & Terrance and Belle, Aurora and Cinderella at the Hall of Fame tent. Nikolas liked Fawn but wasn’t too impressed with Tink (I think she was too intense for him though I don’t know why since his sister is just like that….maybe that was it?). He did seem to like Terrance and we got a pretty nice picture for the album.







We went in to see the princesses next. We had to wait for awhile (we actually were forgotten but it wasn’t a problem). While we waited we met a wonderful family with a service dog. Their dog is an assistance and seizure dog which is what we will be looking into in a few years. They said it was the best thing they’ve ever done and that we won’t be sorry when we get ours. Their dog is a border collie but we want a german shepherd. I know it’s unusual but we had one we were training for that and he passed away at 3yrs old. I just like the breed, size and intelligence of shepherds so that’s what we will have trained.

After asking how much longer the wait was (it was over 30 min by then) we were taken back and got to meet their Royal Highnesses. Once again he was flirting up a storm with the pretty princesses who were so focused on him. We got picture with Cinderella, Belle and Aurora. I love the one with Aurora because we have that exact same pose with her from 4 years ago. That was totally unplanned but really nice.







After his flirt session with the princesses we shopped for a few minutes then went next door to meet Mickey and Minnie Mouse. Boo seemed to like Minnie but was really excited to meet Mickey again. This time he was dressed in regular clothes not sorcerer ones! Mickey and Minnie signed both autograph books then we left to ride the train. We hopped on the train and rode around to Frontierland so Mikayla and I could ride Big Thunder Mountain Railroad. Mom and Dad took Nikolas wandering while we were gone. It was getting a later now (a bit after 6pm) and Mom was getting too tired so we started out of the park. She hadn’t ridden Pirates yet but since we were coming back on Saturday we didn’t worry about it. I did get them to stop for a picture in front of the castle while it was all lit up and just dark enough to get a really nice picture (after LOTS of tries).
Time to head back for dinner and a decent night’s sleep.

Day 3 It's All About The Magic Kingdom!

Ahhhh, the Magic Kingdom….my favorite place to relax and enjoy being a Disney nut. No one looks funny at the “grown-up” who is wearing the Mickey Mouse shirt, ears, etc. You can really be a kid there and it’s OK.
The kids and I woke all up in a good mood and ready to go. We got the grandparents and went to breakfast at GKTW. (We ate breakfast and dinner there every day to save and because it’s really good food.) I just knew this would be a very relaxing day for me and my family. OK, so dad is over all the Disney World trips (maybe we took 1 too many when I was a kid?) but he’s being a good sport since my kids are new to it all. We ate breakfast, packed up and were at the Magic Kingdom getting parked and to the monorail by 10:30. I decided against being there for rope drop at any park since DD is not a morning person and my parents really aren’t into all the parks anymore. Let’s keep it fun and relaxing. We also decided to use the monorail since wheelchairs & strollers on the ferry are just not a fun way to start the day.
We get there, go thru security and head for Tomorrow Land before we go to ToonTown. Of course I have to stop for some photopass pics in front of the castle.



It was a beautiful day, sunny and warm but not hot. Funny how 82 degrees in Florida feels so much cooler than 82 in Indiana. Today we will focus on rides that either Boo can’t ride since we have someone to watch him or ones that it takes another set of hands for him to ride and lots of character pictures. I was quite surprised at how much Nikolas enjoyed meeting all the different characters. He was really into being with each one of them and would get frustrated if we went too long without character interaction. That’s my little man…lovin’ Disney already!
Back to Tomorrow Land…we started on the TTA since Space Mountain was still being refurbished (that was a complete bummer since it’s my FAV!). After that we went over to the Carosel of Progress and Buzz Lightyear. Nikolas enjoyed all of them. He really likes about anything with movement which means he should like most of the park.
After that we decide to head to Pinocchio Haus for lunch. Let’s just say that wasn’t as smooth as I’d hoped and leave it. When lunch was finished and tempers had cooled we went over to Small World and rode. This is one of my mom’s favorites. I think it’s really cute but there was too much going on for Nikolas. He just sat quietly and listened to the music without even trying to look around. With his visual issues he just has a difficult time processing lots of things at once. He did seem to enjoy all the music though. Next we rode Peter Pan. He hadn’t seen that DVD yet but he really seemed to enjoy that ride. I think the “flying” over the town had a lot to do with it since the motions are intensified a bit because the underside of the ships are free.

Up next...the rest of day 3...

Here's the beginning of our trip report...

OK, this trip report is gonna be long so I'm going to break it down into tons of posts. They will be the same as on the DisBoards so you won't miss anything if you don't read both.

Well, here goes….

Day 1…Time to leave!
I had to be up at 3:00 am and the kids had to be ready by 4:00 to meet the limo. It was right on time and got here at 4:15. :)
I admit I was worried because another Wish family left the week before and the limo was an hour LATE!!! We did all our boarding passes and baggage payments online the night before so we had some “wiggle” room but I was still a bundle of nerves.
I don’t have any limo pictures since it was so dark still-sorry! Mikayla was excited to ride in the limo but Nikolas was unimpressed.
I thought for sure Nikolas would sleep but...not a wink. Getting to the airport and thru security went off without a hitch. We got loaded on the plane and I got the cutest picture of Nikolas waiting for us to take off…



That last one was taken by me as we were about half way thru take-off. He LOVED the feeling I guess. (btw..it’s about 7:15am & I’m soooo tired!)
The plane ride was uneventful except that the pastry & iced coffee Mikayla got from Starbucks made her a bit queasy on the plane so she sat with her head down for about half of the flight. I warned her about too much sugar…mom’s don’t know anything do we? Hehehe..
When we landed in Orlando we had no trouble getting to the GKTW greeter. He was a very sweet older gentleman whom I believe knows everything about that airport. We found the luggage and got our van in the blink of an eye.
Finally…we were off to Give Kids The World!!!!

We're back!

OK, this was an AWESOME trip! While I would NEVER wish illness on a child (or anyone for that matter), if your little one has a life-threatening diagnosis....please look into a trip to Give Kids The World. There are many Wish foundations that can send you there. They are completely set up for our kids....lovely villas with huge bathrooms that are completely accessible (I wanted to bring that bathroom home with me!).
They love the kids and it shows every second of every day. Most of the people there are volunteers and they spoil everyone in the family. They have activities every evening that completely include ALL the children no matter how differently-abled they are. Santa comes and will hold any child you bring to him. A beautiful little girl on a vent was a few people before us and he told her momma to "bring that little one here so I can hold her". It brought tears to my eyes! Many people are so afraid of our kids but not there. Mayor Clayton (a 6ft tall rabbit) dances with the kids and interacts fully with any who want to try.
I'm getting ready to start my trip report on the DisBoards. I'll also post it here for those who aren't on there. It's going to be in phases and I'm trying to go day-by-day with pictures. Our PhotoPass CD from Disney has been ordered so there will be pictures too! :)


I took mostly video but there are random pictures I'll add as I load them. Have fun and enjoy reliving our trip with us!


Our first photo is of Boo waiting for the plane to take off...


I think he's just a little excited....what do you think? hehehe!