Well Wednesday is now MRI day. The doctor isn't very happy with the way this foot is healing so he wants to MRI it before giving an OK for physical therapy. If the MRI is good then we start PT; if not then we look at surgery.
Well I've got entirely too much to do to have surgery so I've made up my mind that it's going to look beautiful and we'll start PT soon. I'm cutting things to sew for the shop and for my family. I'm also doing lots of studying since finals are coming up. YAY for Spring Break!! LOL!
I'll get answers on Thursday afternoon so I guess I'll just have to keep the crutches handy and wait...patience is not my strong point either. ;)
Showing posts with label hospital tests. Show all posts
Showing posts with label hospital tests. Show all posts
Sunday, March 13, 2011
Saturday, October 16, 2010
Mitochondrial Diseses
We now have 2 more disorders to add to the rather complex list.
Mitochondrial Complex 1 and Complex 5 deficiencies. Most of the information I found last night was so clinical. I'm looking for information that is in layman's terms so I can explain it to my family and figure out a plan of action. If anyone has any good (or bad for that matter) ideas where to look PLEASE PLEASE let me know. Also if you're dealing with this or have friends/family who are please send me to their blog. I'd love to get another parent's point of view and see what I can gather from them.
Thanks! Enjoy your weekend...I'm going to "just breathe" for awhile.
Mitochondrial Complex 1 and Complex 5 deficiencies. Most of the information I found last night was so clinical. I'm looking for information that is in layman's terms so I can explain it to my family and figure out a plan of action. If anyone has any good (or bad for that matter) ideas where to look PLEASE PLEASE let me know. Also if you're dealing with this or have friends/family who are please send me to their blog. I'd love to get another parent's point of view and see what I can gather from them.
Thanks! Enjoy your weekend...I'm going to "just breathe" for awhile.
Sunday, March 21, 2010
MRI's & EEG's
Well we're finally home from the hospital. Boo had a 24 hour video eeg and a sedated MRI. The VEEG was so boring! You just stay in the room and they video everything he does for 24 hours. He did have some "events" one the screen but I think they are probably subclinical seizure activity. He's grown & gained weight but we haven't upped his medications so it's probably time. I don't mean to sound like I don't care, I do. It's just that we've been doing this for so long I'm tired of the "let's try this or test that" and still no answers. As long as his seizures are controlled I'm OK and letting God deal with the rest.
Anway, after they disconnected him we went down to MRI so they could sedate him and do that. Once again he "politely declined" to wake up after the procedure. I warned the anestheologist, she assured me this gas wouldn't do that...ummmm well it did. I asked what she used so I could add it to my list of things not to use again but no one could tell me so I get to research that later. His vitals looked great but it took 6 hours for him to wake up so I'd rather not use it again.
I understand that it could be a few days to a few weeks before we get the final test results...have I said how much is dislike waiting for test results?
Well, the kids are on spring break this week and our 9th anniversary is Wednesday so I'm planning to just spend time with the kiddos, sew, and enjoy the 3hour respite we'll have on Wednesday. The answers will come when they come...worrying does no good. Enjoy the rest of the weekend...I'm going to. :)
Anway, after they disconnected him we went down to MRI so they could sedate him and do that. Once again he "politely declined" to wake up after the procedure. I warned the anestheologist, she assured me this gas wouldn't do that...ummmm well it did. I asked what she used so I could add it to my list of things not to use again but no one could tell me so I get to research that later. His vitals looked great but it took 6 hours for him to wake up so I'd rather not use it again.
I understand that it could be a few days to a few weeks before we get the final test results...have I said how much is dislike waiting for test results?
Well, the kids are on spring break this week and our 9th anniversary is Wednesday so I'm planning to just spend time with the kiddos, sew, and enjoy the 3hour respite we'll have on Wednesday. The answers will come when they come...worrying does no good. Enjoy the rest of the weekend...I'm going to. :)
Monday, February 15, 2010
Pneumonia....grrrrrr!!
Well we've spent most of this week battling pneumonia. Boo's done more breathing treatments and taken more antibiotics than should be allowed. The upside is that we didn't have to go to St. V's.
We ended up at his re-check today (yep, 4+ inches of snow-no plowed roads & we went to the doctor). After fighting the crazy folks for my lane of the road; we got to the pediatrician just in time to watch someone slide right into a brand new Caddy! No real damage & no one was hurt. We managed to get parked and inside without getting too snow covered.
So here's where we are...
We get to start weaning down the breathing treatments. We only have 4 days of 2 different antibiotics left and he gets to go back to school on Wednesday (if it's open). We have to keep doing the pulmicort 2x day until who knows when but it could be worse. He's feeling better so we may start using his stander again in a few days. Right now we're only sitting up in the feeder seat or laying down.
We were supposed to go to his sleep study tonight but with all this snow we had to reschedule. I wanted this to be read & back to Dr. Lisa before his appointment in 2 weeks but they couldn't reschedule until the day after his neurology appointment. The doc will call if anything is weird but I like to be able to discuss the results since the nurse who calls results isn't very knowledgeable and not so great about getting back to us. We haven't had any more regression so I guess that's a good thing & I doubt the sleep study will tell us much anyway.
Maybe the intensive therapies we're planning for the summer will help bring back his communication and build up his strength. I really hope he can get that back. He's still such a happy little man but I want him to be able to let people know what he wants or needs. Unfortunately I can't be with him 24/7 and sometimes it even takes me a while to figure out what he needs. Time...we just have to be patient, get him completely well now and figure out the rest later. :)
We ended up at his re-check today (yep, 4+ inches of snow-no plowed roads & we went to the doctor). After fighting the crazy folks for my lane of the road; we got to the pediatrician just in time to watch someone slide right into a brand new Caddy! No real damage & no one was hurt. We managed to get parked and inside without getting too snow covered.
So here's where we are...
We get to start weaning down the breathing treatments. We only have 4 days of 2 different antibiotics left and he gets to go back to school on Wednesday (if it's open). We have to keep doing the pulmicort 2x day until who knows when but it could be worse. He's feeling better so we may start using his stander again in a few days. Right now we're only sitting up in the feeder seat or laying down.
We were supposed to go to his sleep study tonight but with all this snow we had to reschedule. I wanted this to be read & back to Dr. Lisa before his appointment in 2 weeks but they couldn't reschedule until the day after his neurology appointment. The doc will call if anything is weird but I like to be able to discuss the results since the nurse who calls results isn't very knowledgeable and not so great about getting back to us. We haven't had any more regression so I guess that's a good thing & I doubt the sleep study will tell us much anyway.
Maybe the intensive therapies we're planning for the summer will help bring back his communication and build up his strength. I really hope he can get that back. He's still such a happy little man but I want him to be able to let people know what he wants or needs. Unfortunately I can't be with him 24/7 and sometimes it even takes me a while to figure out what he needs. Time...we just have to be patient, get him completely well now and figure out the rest later. :)
Wednesday, July 22, 2009
All done!
Shunt surgery is all done and was a success. It turns out that the valve was partially (well mostly) blocked. Dr Y took out the old shunt and put in a new "fancy dancy" one and we should get to go home tomorrow.
We still have to see Dr H for the sleep apnea but things should get a lot better now so YIPPEE!!!!
We still have to see Dr H for the sleep apnea but things should get a lot better now so YIPPEE!!!!
Wednesday, July 8, 2009
And now we wait...
Well the testing, at least this portion, is finished. Now we get to wait for a few days or weeks (depending on the doctor) to get the results. Boo's feeling ok I think. I have noticed a few more oddities but, again, nothing that screams "shunt" or otherwise. Now I'm adding yogurt to his diet because of extremely loose stools. With all the meds he's on he should be constipated...I just don't know. You know that "mom sense" kicks in and you know something is wrong but can't figure out what it is...well that's me right now. I've done the Medical Assistant job and gone thru all the symptoms...nothing relates. I don't feel too bad though 'cause the Doc's don't know either. Hopefully one of the 2 tests we did Monday & Tuesday will give us answers. If not we keep testing but that could mean a stay in the hospital and I'd really like to avoid that. I'm going to sew up some "hospital friendly" clothes & pj's today and tomorrow just in case. Time to get busy...
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