We now have 2 more disorders to add to the rather complex list.
Mitochondrial Complex 1 and Complex 5 deficiencies. Most of the information I found last night was so clinical. I'm looking for information that is in layman's terms so I can explain it to my family and figure out a plan of action. If anyone has any good (or bad for that matter) ideas where to look PLEASE PLEASE let me know. Also if you're dealing with this or have friends/family who are please send me to their blog. I'd love to get another parent's point of view and see what I can gather from them.
Thanks! Enjoy your weekend...I'm going to "just breathe" for awhile.
Hi Suzanne! I am so sorry I haven't written before now!! Congratulations on going back to school! I hope the kids are better soon! It must be so challenging!
ReplyDeleteTake care!
Vickie
Hi Suzanne! Our boys DO look very similar. And VERY handsome! :) I need to look into mito some more because several neurogenetic/neurometabolic doctors have said "he doesn't look mito" in regard to my son, and I want to know what that means! If you find a good layman's guide, please pass it my way. :)
ReplyDeleteOh, and the similarities don't stop with our boys! :) We've been married 8 years and have a bunch of critters (dogs, chickens, bees, etc.) at our house too! Life in all of its forms is beautiful!
Sending you and your family much love!