I just wanted to wish all the mothers and mothers-to-be (expecting, TTC, or just waiting for the right time) a very Happy Mother's Day!
Please, relax and enjoy your day and your family. You've earned the time to take a breather and relax. Today isn't a day for housework and stress-only for relaxing with the ones you love...besides it's all going to be there on Monday. ;)
Showing posts with label etsy for autism. Show all posts
Showing posts with label etsy for autism. Show all posts
Sunday, May 10, 2009
Saturday, May 9, 2009
Sick kids (again) but it's getting better...slowly
Ah well, here we go again...."Gracie" is still sick. She sounds horrible-cruddy cough and runny nose but no real fevers. I took her to the doctor last Friday (had to get thru ISTEP first 'cause the school would FREAK if she missed any time even if she was dying!) . The walk-in doc we got is really nice but decided to take her off the Zyrtec and use D-Allergy. Ummm, why? Anyway she didn't get any better and I called to leave a message for Dr. P. (her doc). Well long story short, Dr. P wanted to see her the next morning because she wasn't tested for influenza or anything else when she should have been.
She was flu tested (negative) then put on antibiotics and her inhaler 3x day for the next 10 days plus OTC cough meds as needed. She's already feeling a bit better and not nearly as cranky. (YEA!!!)
Now it seems that Boo may be getting sick too. He's started coughing and feeling warm but no real fever and boy is that child CRANKY!
My sewing time has been minimal to say the least but I did get 2 diapers done for him over the last few days. I've had to "frankenstein" them. He's just too skinny for the KCKOne large child. I've tried to narrow it and make it work but no luck. I just decided to take my youth pattern and mix in all the parts of the diapers he has to make one that fits and will grow with him for a while. I like the 2 I've finished. I did one with touchtape and the other with snaps. I do think I'll narrow the wings on them and allow enough room for 1 snap instead of 2. I also think I"ll have to do the front loop differently for the ones for school since I don't like snap down rises and they (school staff) need touchtape on the ones for school.
On a better note, we finished the summer IEP for Boo and it's pretty good. His kindergarten teacher loves the idea of cloth diapers and used them on her kids so she's great with more frequent changes. She's also trying to get another aide in the room so there are 3 adults since there will be a few kids in there that are very physically dependant. I still worry that he won't get the attention he needs but Angie is a great teacher and will make sure I'm keep current on everything. I want him to have an aide that is no more than 1:3 but so far that's not going to happen. I know because of his health issues and his needs I can push it and press for a 1:1 aide (least restrictive environment-Article 7 and medical necessity) but I'm going to wait and see how many kids there are and how many aides we end up with before I do that. I think the extra funds a nurse would cost could be better spent educating these kids. Time to "hurry up and wait".
Oh and Boo got a new haircut-just like the big kids. I'm still not sure I like it but everyone agrees he looks so much more grown up!
She was flu tested (negative) then put on antibiotics and her inhaler 3x day for the next 10 days plus OTC cough meds as needed. She's already feeling a bit better and not nearly as cranky. (YEA!!!)
Now it seems that Boo may be getting sick too. He's started coughing and feeling warm but no real fever and boy is that child CRANKY!
My sewing time has been minimal to say the least but I did get 2 diapers done for him over the last few days. I've had to "frankenstein" them. He's just too skinny for the KCKOne large child. I've tried to narrow it and make it work but no luck. I just decided to take my youth pattern and mix in all the parts of the diapers he has to make one that fits and will grow with him for a while. I like the 2 I've finished. I did one with touchtape and the other with snaps. I do think I'll narrow the wings on them and allow enough room for 1 snap instead of 2. I also think I"ll have to do the front loop differently for the ones for school since I don't like snap down rises and they (school staff) need touchtape on the ones for school.
On a better note, we finished the summer IEP for Boo and it's pretty good. His kindergarten teacher loves the idea of cloth diapers and used them on her kids so she's great with more frequent changes. She's also trying to get another aide in the room so there are 3 adults since there will be a few kids in there that are very physically dependant. I still worry that he won't get the attention he needs but Angie is a great teacher and will make sure I'm keep current on everything. I want him to have an aide that is no more than 1:3 but so far that's not going to happen. I know because of his health issues and his needs I can push it and press for a 1:1 aide (least restrictive environment-Article 7 and medical necessity) but I'm going to wait and see how many kids there are and how many aides we end up with before I do that. I think the extra funds a nurse would cost could be better spent educating these kids. Time to "hurry up and wait".
Oh and Boo got a new haircut-just like the big kids. I'm still not sure I like it but everyone agrees he looks so much more grown up!
Thursday, April 9, 2009
Autism Awareness month
April is Autism Awareness month! Please take a few minutes out of your day to read a bit about this spectrum of disorders. There is so much more to them than "Rain Man". I know that's what most people picture when they hear "Autism". There are many different forms of several different disorders on this spectrum.
I once had it explained like this...
Autism is like a double rainbow. The bright inner rainbow is your basic Autism disorder. One end is the mildly affected person the top/middle is the moderately affected and the other end is the severely affected. The second, less visible, rainbow is for the other Austim disorders like Asperger's Syndrome and Pervasive Developmental Disorder (PDD). This rainbow is marked the same way...mild, moderate and severe.
My DD is somewhere in the mild to moderate category. To look at her you'd never know there were any issues, to speak with her you think...Albert Einstein, then as you get to know her you begin to notice the differences. Some people say, "brat" or "needs better discipline". Her teachers are fond of "she should know that". My response to that is "she would if you'd take the time to TEACH HER-which, by the way, is what you are being paid to do". I've gotten so discouraged that my tact is gone after 7 years. I try to remember that each year is a new set of teachers and I let them form their opinions before I make known what the school & co-op don't. They have a special needs child in their class. I frequently hear things like "she's too smart to have anything like that". Ummm, maybe they need to read up on this stuff again.
I'm getting so tired and frustrated with this fight.
At least they don't fight me with her brother. They're quick to give him whatever I ask for. I guess the fact that he's so obviously physically and mentally delayed that they can't deny it is in his favor. That would make our school system look really bad. It's such a shame that they deny children like my daughter and another of her classmates any help and services even with diagnoses from expert physicians. It does such a disservice to them and our area.
I'm asking that you, please, read up on the different Autism Spectrum disorders. Maybe you will look a little differently at that child who's having a melt down in Kroger or a tantrum in WalMart next time. We aren't bad parents, we do provide discipline for our children but sometimes we have do deviate from our regular schedules and these little ones just can't handle that. Bear with us and please don't judge...you may not have all the information to make the right judgement.
http://www.mayoclinic.com/health/aspergers-syndrome/DS00551
www.autismspeaks.org
http://www.ninds.nih.gov/disorders/autism/detail_autism.htm
I once had it explained like this...
Autism is like a double rainbow. The bright inner rainbow is your basic Autism disorder. One end is the mildly affected person the top/middle is the moderately affected and the other end is the severely affected. The second, less visible, rainbow is for the other Austim disorders like Asperger's Syndrome and Pervasive Developmental Disorder (PDD). This rainbow is marked the same way...mild, moderate and severe.
My DD is somewhere in the mild to moderate category. To look at her you'd never know there were any issues, to speak with her you think...Albert Einstein, then as you get to know her you begin to notice the differences. Some people say, "brat" or "needs better discipline". Her teachers are fond of "she should know that". My response to that is "she would if you'd take the time to TEACH HER-which, by the way, is what you are being paid to do". I've gotten so discouraged that my tact is gone after 7 years. I try to remember that each year is a new set of teachers and I let them form their opinions before I make known what the school & co-op don't. They have a special needs child in their class. I frequently hear things like "she's too smart to have anything like that". Ummm, maybe they need to read up on this stuff again.
I'm getting so tired and frustrated with this fight.
At least they don't fight me with her brother. They're quick to give him whatever I ask for. I guess the fact that he's so obviously physically and mentally delayed that they can't deny it is in his favor. That would make our school system look really bad. It's such a shame that they deny children like my daughter and another of her classmates any help and services even with diagnoses from expert physicians. It does such a disservice to them and our area.
I'm asking that you, please, read up on the different Autism Spectrum disorders. Maybe you will look a little differently at that child who's having a melt down in Kroger or a tantrum in WalMart next time. We aren't bad parents, we do provide discipline for our children but sometimes we have do deviate from our regular schedules and these little ones just can't handle that. Bear with us and please don't judge...you may not have all the information to make the right judgement.
http://www.mayoclinic.com/health/aspergers-syndrome/DS00551
www.autismspeaks.org
http://www.ninds.nih.gov/disorders/autism/detail_autism.htm
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