Computer games for the challenged...

I've been looking into computer games for Boo. There is an OK selection out there, which is nice. I'm so tired of the TV babysitter. I got Daddy to adapt a mouse to use one of Boo's switches and downloaded a trial version of one of the games I'm considering.

I think he likes them! We need to get an adapter for the mouse that now works with his switch so he's trying to use a standard mouse. It's a bit challenging but he's only got to click it on either side so he's doing pretty well. Looks like I'll be ordering that game and maybe a few others. Thankfully they're reasonably priced between $30-$60. It's a lot of money but most of them have several different games on each disc.

"For A Cure" 3 very important words-that need to be shared

Generally I don't get into all the messes of other's lives. I have enough drama here. However, this has come to my attention and it really saddens and bothers me. Apparently "for a cure" is not for use by any one but The Komen Foundation.  ??? I understand the "pink" thing but they are suing an Atlanta Mito group who used the phrase. Ummm Mito is marked by a GREEN ribbon with the word "MITO" on or under it. We aren't taking ANY funds from The Komen Foundation.

Charity Brawl:Nonprofits aren't so generous when a name's at stake

I honestly want a cure for breast cancer! I have friends and family members who have or have had this horrible disease. That said, there are a LOT of diseases that need a cure. There are many non-profits looking "for a cure" for their chosen disease. I am VERY DESPERATELY looking "for a cure" for Mitochondrial Disease. It is slowly, painfully KILLING MY SON!! It will continue to devastate the lives of families who watch their young child wither away and are unable to even provide comfort. There are no treatments for Mito. There is no cure for Mito.

Breast cancer has had so much publicity that there are now treatments and even cures for some forms. Share the wealth please. Most people don't even know Mito exists much less what it is. I personally think that Susan Komen would be very saddened by this waste of funds for lawsuits over the use of 3 very important words used in the life of many with other life threatening or life altering diseases. :(

Mitochondrial Diseses

We now have 2 more disorders to add to the rather complex list.

 Mitochondrial Complex 1 and Complex 5 deficiencies. Most of the information I found last night was so clinical. I'm looking for information that is in layman's terms so I can explain it to my family and figure out a plan of action. If anyone has any good (or bad for that matter) ideas where to look PLEASE PLEASE let me know. Also if you're dealing with this or have friends/family who are please send me to their blog. I'd love to get another parent's point of view and see what I can gather from them.

Thanks! Enjoy your weekend...I'm going to "just breathe" for awhile.