It's been a generally quiet week.....YEA!!!!
Sat-sewed a new diaper for Boo. Yep, only 1-my "mom skills" were in high demand EVERY time I went up to the sewing room.
Sun-Mother's Day-I got a Wii Fit (yes, I've been asking for one so I will get more motivated to exercise). Gracie made me breakfast in bed and it was a very nice day. :-)
Mon-nothin' new...Boo did meet a new OT at St. V's today and all his therapists agreed that he needs a 1:1 or no more than 1:2 classroom aide in the fall...now if we can just get the documentation then make the school comply....not going to worry about that until closer to August.
Tues-Boo went to the park with the respite nurse and had a good time; Gracie still feels crummy but isn't worse so I call that a plus
Wed-a nice quiet day
Thurs-Boo went for another walk with the respite nurse. Josh took him next door to the Fairgrounds. I didn't realize he was going to be gone so long or out in the direct sun so much. Boo got a pretty nasty sunburn on his face.
Friday-Gracie is spending the night with my mom & cooking from her NintendoDS Cooking game. She's making stuffed tomatoes and pavlova (fruit, whipped cream & meringue) for dessert. I got more things to make a new blend for Boo to try & some of his favorite baby foods to eat orally.
Maybe I'll remember to update like this most weeks...it's a nice way to summerize the week.
Have a great weekend everyone!
Friday, May 15, 2009
Sunday, May 10, 2009
"Facebook Fridays"
OK on MommyBee's blog Jenni's talking about her "Facebook Friday" updates. Well I rarely get on my Facebook page so there are never updates for that so I think I'll continue to try do my updates here. Like I remember to do them anyway...but I'm gonna try.
Here's a recap of our week...
Sat/Sun-Gracie is sick (cough, runny nose, etc) the walk-in Doc took her off the Zyrtec to give her a different kind of allergy med (D-Allergy) because it *might* make her cough better. No such luck! I doubt we sleep much tonight here.
Mon-I got a new monkey pul diaper done for Boo. This one is a frankenstein pattern I've created because nothing seems to fit his super skinny booty. I used touchtape fasteners for this one. I 'm going to do a snap one later this week.
Tues-nothin' new today
Wed-Gracie is not anybetter and calling from school to tell me how sick she is. I'm going to have to call the doc tomorrow since her doc is off on Wednesdays.
Thurs-Called Dr. P. She wants Gracie in first thing tomorrow morning to be tested for flu since they didn't do that (like required right now!) last Friday when I took her in. Glad we don't have copays anymore. They forget these visits cost money sometimes. She's to start doing the inhaler 3x a day again. I did finish the snap version of Boo's monkey diapers today. It came out nice. :)
Fri-Gracie's flu test came back negative but she's to continue the inhaler and add an antibiotic. If she's not much better in a few days we also get to add prednisone.
Sat-Gracie is getting better and Boo is now getting sick too.
Sun-Happy Mother's Day to all the mom's out there!
Here's a recap of our week...
Sat/Sun-Gracie is sick (cough, runny nose, etc) the walk-in Doc took her off the Zyrtec to give her a different kind of allergy med (D-Allergy) because it *might* make her cough better. No such luck! I doubt we sleep much tonight here.
Mon-I got a new monkey pul diaper done for Boo. This one is a frankenstein pattern I've created because nothing seems to fit his super skinny booty. I used touchtape fasteners for this one. I 'm going to do a snap one later this week.
Tues-nothin' new today
Wed-Gracie is not anybetter and calling from school to tell me how sick she is. I'm going to have to call the doc tomorrow since her doc is off on Wednesdays.
Thurs-Called Dr. P. She wants Gracie in first thing tomorrow morning to be tested for flu since they didn't do that (like required right now!) last Friday when I took her in. Glad we don't have copays anymore. They forget these visits cost money sometimes. She's to start doing the inhaler 3x a day again. I did finish the snap version of Boo's monkey diapers today. It came out nice. :)
Fri-Gracie's flu test came back negative but she's to continue the inhaler and add an antibiotic. If she's not much better in a few days we also get to add prednisone.
Sat-Gracie is getting better and Boo is now getting sick too.
Sun-Happy Mother's Day to all the mom's out there!
Happy Mother's Day
I just wanted to wish all the mothers and mothers-to-be (expecting, TTC, or just waiting for the right time) a very Happy Mother's Day!
Please, relax and enjoy your day and your family. You've earned the time to take a breather and relax. Today isn't a day for housework and stress-only for relaxing with the ones you love...besides it's all going to be there on Monday. ;)
Please, relax and enjoy your day and your family. You've earned the time to take a breather and relax. Today isn't a day for housework and stress-only for relaxing with the ones you love...besides it's all going to be there on Monday. ;)
Saturday, May 9, 2009
Sick kids (again) but it's getting better...slowly
Ah well, here we go again...."Gracie" is still sick. She sounds horrible-cruddy cough and runny nose but no real fevers. I took her to the doctor last Friday (had to get thru ISTEP first 'cause the school would FREAK if she missed any time even if she was dying!) . The walk-in doc we got is really nice but decided to take her off the Zyrtec and use D-Allergy. Ummm, why? Anyway she didn't get any better and I called to leave a message for Dr. P. (her doc). Well long story short, Dr. P wanted to see her the next morning because she wasn't tested for influenza or anything else when she should have been.
She was flu tested (negative) then put on antibiotics and her inhaler 3x day for the next 10 days plus OTC cough meds as needed. She's already feeling a bit better and not nearly as cranky. (YEA!!!)
Now it seems that Boo may be getting sick too. He's started coughing and feeling warm but no real fever and boy is that child CRANKY!
My sewing time has been minimal to say the least but I did get 2 diapers done for him over the last few days. I've had to "frankenstein" them. He's just too skinny for the KCKOne large child. I've tried to narrow it and make it work but no luck. I just decided to take my youth pattern and mix in all the parts of the diapers he has to make one that fits and will grow with him for a while. I like the 2 I've finished. I did one with touchtape and the other with snaps. I do think I'll narrow the wings on them and allow enough room for 1 snap instead of 2. I also think I"ll have to do the front loop differently for the ones for school since I don't like snap down rises and they (school staff) need touchtape on the ones for school.
On a better note, we finished the summer IEP for Boo and it's pretty good. His kindergarten teacher loves the idea of cloth diapers and used them on her kids so she's great with more frequent changes. She's also trying to get another aide in the room so there are 3 adults since there will be a few kids in there that are very physically dependant. I still worry that he won't get the attention he needs but Angie is a great teacher and will make sure I'm keep current on everything. I want him to have an aide that is no more than 1:3 but so far that's not going to happen. I know because of his health issues and his needs I can push it and press for a 1:1 aide (least restrictive environment-Article 7 and medical necessity) but I'm going to wait and see how many kids there are and how many aides we end up with before I do that. I think the extra funds a nurse would cost could be better spent educating these kids. Time to "hurry up and wait".
Oh and Boo got a new haircut-just like the big kids. I'm still not sure I like it but everyone agrees he looks so much more grown up!
She was flu tested (negative) then put on antibiotics and her inhaler 3x day for the next 10 days plus OTC cough meds as needed. She's already feeling a bit better and not nearly as cranky. (YEA!!!)
Now it seems that Boo may be getting sick too. He's started coughing and feeling warm but no real fever and boy is that child CRANKY!
My sewing time has been minimal to say the least but I did get 2 diapers done for him over the last few days. I've had to "frankenstein" them. He's just too skinny for the KCKOne large child. I've tried to narrow it and make it work but no luck. I just decided to take my youth pattern and mix in all the parts of the diapers he has to make one that fits and will grow with him for a while. I like the 2 I've finished. I did one with touchtape and the other with snaps. I do think I'll narrow the wings on them and allow enough room for 1 snap instead of 2. I also think I"ll have to do the front loop differently for the ones for school since I don't like snap down rises and they (school staff) need touchtape on the ones for school.
On a better note, we finished the summer IEP for Boo and it's pretty good. His kindergarten teacher loves the idea of cloth diapers and used them on her kids so she's great with more frequent changes. She's also trying to get another aide in the room so there are 3 adults since there will be a few kids in there that are very physically dependant. I still worry that he won't get the attention he needs but Angie is a great teacher and will make sure I'm keep current on everything. I want him to have an aide that is no more than 1:3 but so far that's not going to happen. I know because of his health issues and his needs I can push it and press for a 1:1 aide (least restrictive environment-Article 7 and medical necessity) but I'm going to wait and see how many kids there are and how many aides we end up with before I do that. I think the extra funds a nurse would cost could be better spent educating these kids. Time to "hurry up and wait".
Oh and Boo got a new haircut-just like the big kids. I'm still not sure I like it but everyone agrees he looks so much more grown up!
Wednesday, April 29, 2009
So tired...
I'm so tired now. Tired of fighting with the middle school about my daughter, worn out from trying to please my custom order clients, tired of my messy house, tired of going thru all the stuff (JUNK) we really don't need that's taking up so much space. I sooooo need a vacation!!
The middle school is driving me NUTS! Gracie is failing 3 classes (this from a girl with 98-99th percentile ISTEPs!)and all they can say is, "she needs to be more responsible....she needs to do blah blah blah....! Actually any more all I hear is "blah, blah, blah" when they call kinda reminds me of the teacher on the Peanuts cartoons we used to watch as kids. ;)
I'm sorting and discarding anything that I possibly can. I mean clothes, boxes of anything I don't want to look at, old movies that Nikolas won't watch 'cause they're too girly, all that extra bathroom junk that somehow accumulates. Why do we need to try 800 different hair products anyway? I mean Gracie & I both usually wear a ponytail or braid, possibly a hair clip. Who needs that much stuff?Pappa and Boo both have really short hair so they don't either.
I'm so over all the accumulated crud. Part of me is going "Please just make it all go away!!" The other part says I should at least look at it to be sure we really don't use it before I pitch it. I hate to re-buy things I just tossed out.
On a better note...I'm setting up a set of recycling bins for some of the things we use a lot of like paper and plastic. It's not as green as I'd like but we're in a super small house and they don't pick up our recycling so I have to store and transport it to the city dump where the recycling center is.
I think I'm going to stop taking custom orders for awhile. I'm getting so burned out. I haven't even been doing that many but I started this as a hobby and to help out others. I find that I don't even want to sew much anymore. Plus I can't afford to have any real income from this or we could lose Boo's medicaid and no other insurance will touch him because of all his medical issues.
I think I need to get a few nights of sleep that are more than 5 hours and maybe I'll freshen up some.
Sorry, I didn't mean to rant and vent this much but sometimes that happens when your life is crazy like mine.
Have a good night!
The middle school is driving me NUTS! Gracie is failing 3 classes (this from a girl with 98-99th percentile ISTEPs!)and all they can say is, "she needs to be more responsible....she needs to do blah blah blah....! Actually any more all I hear is "blah, blah, blah" when they call kinda reminds me of the teacher on the Peanuts cartoons we used to watch as kids. ;)
I'm sorting and discarding anything that I possibly can. I mean clothes, boxes of anything I don't want to look at, old movies that Nikolas won't watch 'cause they're too girly, all that extra bathroom junk that somehow accumulates. Why do we need to try 800 different hair products anyway? I mean Gracie & I both usually wear a ponytail or braid, possibly a hair clip. Who needs that much stuff?Pappa and Boo both have really short hair so they don't either.
I'm so over all the accumulated crud. Part of me is going "Please just make it all go away!!" The other part says I should at least look at it to be sure we really don't use it before I pitch it. I hate to re-buy things I just tossed out.
On a better note...I'm setting up a set of recycling bins for some of the things we use a lot of like paper and plastic. It's not as green as I'd like but we're in a super small house and they don't pick up our recycling so I have to store and transport it to the city dump where the recycling center is.
I think I'm going to stop taking custom orders for awhile. I'm getting so burned out. I haven't even been doing that many but I started this as a hobby and to help out others. I find that I don't even want to sew much anymore. Plus I can't afford to have any real income from this or we could lose Boo's medicaid and no other insurance will touch him because of all his medical issues.
I think I need to get a few nights of sleep that are more than 5 hours and maybe I'll freshen up some.
Sorry, I didn't mean to rant and vent this much but sometimes that happens when your life is crazy like mine.
Have a good night!
Thursday, April 9, 2009
Autism Awareness month
April is Autism Awareness month! Please take a few minutes out of your day to read a bit about this spectrum of disorders. There is so much more to them than "Rain Man". I know that's what most people picture when they hear "Autism". There are many different forms of several different disorders on this spectrum.
I once had it explained like this...
Autism is like a double rainbow. The bright inner rainbow is your basic Autism disorder. One end is the mildly affected person the top/middle is the moderately affected and the other end is the severely affected. The second, less visible, rainbow is for the other Austim disorders like Asperger's Syndrome and Pervasive Developmental Disorder (PDD). This rainbow is marked the same way...mild, moderate and severe.
My DD is somewhere in the mild to moderate category. To look at her you'd never know there were any issues, to speak with her you think...Albert Einstein, then as you get to know her you begin to notice the differences. Some people say, "brat" or "needs better discipline". Her teachers are fond of "she should know that". My response to that is "she would if you'd take the time to TEACH HER-which, by the way, is what you are being paid to do". I've gotten so discouraged that my tact is gone after 7 years. I try to remember that each year is a new set of teachers and I let them form their opinions before I make known what the school & co-op don't. They have a special needs child in their class. I frequently hear things like "she's too smart to have anything like that". Ummm, maybe they need to read up on this stuff again.
I'm getting so tired and frustrated with this fight.
At least they don't fight me with her brother. They're quick to give him whatever I ask for. I guess the fact that he's so obviously physically and mentally delayed that they can't deny it is in his favor. That would make our school system look really bad. It's such a shame that they deny children like my daughter and another of her classmates any help and services even with diagnoses from expert physicians. It does such a disservice to them and our area.
I'm asking that you, please, read up on the different Autism Spectrum disorders. Maybe you will look a little differently at that child who's having a melt down in Kroger or a tantrum in WalMart next time. We aren't bad parents, we do provide discipline for our children but sometimes we have do deviate from our regular schedules and these little ones just can't handle that. Bear with us and please don't judge...you may not have all the information to make the right judgement.
http://www.mayoclinic.com/health/aspergers-syndrome/DS00551
www.autismspeaks.org
http://www.ninds.nih.gov/disorders/autism/detail_autism.htm
I once had it explained like this...
Autism is like a double rainbow. The bright inner rainbow is your basic Autism disorder. One end is the mildly affected person the top/middle is the moderately affected and the other end is the severely affected. The second, less visible, rainbow is for the other Austim disorders like Asperger's Syndrome and Pervasive Developmental Disorder (PDD). This rainbow is marked the same way...mild, moderate and severe.
My DD is somewhere in the mild to moderate category. To look at her you'd never know there were any issues, to speak with her you think...Albert Einstein, then as you get to know her you begin to notice the differences. Some people say, "brat" or "needs better discipline". Her teachers are fond of "she should know that". My response to that is "she would if you'd take the time to TEACH HER-which, by the way, is what you are being paid to do". I've gotten so discouraged that my tact is gone after 7 years. I try to remember that each year is a new set of teachers and I let them form their opinions before I make known what the school & co-op don't. They have a special needs child in their class. I frequently hear things like "she's too smart to have anything like that". Ummm, maybe they need to read up on this stuff again.
I'm getting so tired and frustrated with this fight.
At least they don't fight me with her brother. They're quick to give him whatever I ask for. I guess the fact that he's so obviously physically and mentally delayed that they can't deny it is in his favor. That would make our school system look really bad. It's such a shame that they deny children like my daughter and another of her classmates any help and services even with diagnoses from expert physicians. It does such a disservice to them and our area.
I'm asking that you, please, read up on the different Autism Spectrum disorders. Maybe you will look a little differently at that child who's having a melt down in Kroger or a tantrum in WalMart next time. We aren't bad parents, we do provide discipline for our children but sometimes we have do deviate from our regular schedules and these little ones just can't handle that. Bear with us and please don't judge...you may not have all the information to make the right judgement.
http://www.mayoclinic.com/health/aspergers-syndrome/DS00551
www.autismspeaks.org
http://www.ninds.nih.gov/disorders/autism/detail_autism.htm
Friday, April 3, 2009
A new diaper for our hospital times
One of the fabric coops I belong to is running a group buy on a pattern called "Daddy Flats". What a great design! They are perfect for the hospital. Flats that fold easily and snap so the nurses don't have to use pins. Yep, I've talked with the designer and I'm getting a copy for me. They're made with 2 layers of fabric and take no time at all and minimal sewing skills. You could even pin these if you don't have a snap press for the snaps. Curious? Go to www.daddyflats.com and look at her awesome design. I just wish I'd have thought of this. ;)
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